ACC


ACC is Agenesis of the Corpus Callosum. This is a condition of the brain where the Corpus Callosum did not form during pregnancy. How do I know about this condition? Well, we took Little Man in for his one year appointment and vaccinations. The Dr examined his head and was concerned because he could hear Little Mans pulse through his soft spot so he sent us for and MRI to rule out a bruit or a cluster of blood vessels that could bleed in our sweet one year old boys brain. The MRI came back showing he did not have a bruit (brewy) but has ACC. Some of the symptoms of this are delayed motor development, delayed speech, seizures etc... Apparently there are people walking around with this condition that don't even know it. We are praying that Little Man will be one of those people.
As of now at 13 months he has only been able to get into a sitting position by himself twice. He can sit on his bottom and play for a long time, spin in circles on his bottom and is getting quite good at scootering across the floor on his bottom. He is not trying to pull up on furniture or walk though. For the longest time we would try to get him to stand and he would just keep his legs straight out in front of him. Just in the last week and a half he has started putting his feet down and letting us "walk" him across the floor. We try and try to get him to do things and then all of a sudden he just does them.
We are not concerned about his mental ability. He was saying words at 9 months and continues to add to his vocabulary every day. He says "mama" "dada" "woah" "uhoh" "cat" "shoes" and signs more and please.
Anyway, all of this to say we found out by a fluke that Little Man has a condition that is extremely rare and we have to learn all we can about it. You can go to www.nodcc.org to learn more.

Comments

  1. Welcome to the blogosphere. I look forward to keeping up to date with you this way!

    This entry gives a good understanding of ACC as it relates to Ben. We're also praying for Ben - that he will be one of those who, as you said, is walking around with this condition and doesn't even know it.

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